自闭症成年人如何体验衰老? 一个定性面试研究研究
Rebecca Aitken1,2,3, Katherine Berry1,2, Emma Gowen1
1School of Health Sciences, University of Manchester, Manchester Academic Health Sciences Centre, UK.
Autism : the international journal of research and practice
|February 28, 2026
概括
年长的自闭症成年人希望自闭症知情支持老化良好,突出恐惧,适应性策略,以及社会关系的重要性. 当前的服务往往是不相容的,需要改善社会理解和定制的专业建议.
科学领域:
- 老年学是指老年学的学科.
- 自闭症谱系障碍研究研究
- 医疗保健和社会护理
背景情况:
- 有限的研究存在于自闭症个体的衰老经历.
- 了解老年自闭症成年人的独特需求对于有效的支持至关重要.
研究的目的:
- 探索中年和老年自闭症成年人对健康衰老的看法.
- 在这个人群中确定与年龄相关的健康和社会护理需求.
- 确定服务如何更好地支持自闭症成年人老龄化.
主要方法:
- 17名自闭症成年人 (46-72岁) 用半结构面试进行了采访.
- 采访通过Zoom或电话进行,并使用感应主题分析进行分析.
- 方便和雪球采样策略被用于参与者招募.
主要成果:
- 五个主题出现了:衰老的可能性/恐惧,适应性策略,自闭症接受,社会关系,以及需要自闭症知情的正式支持.
- 参与者认为对自闭症和衰老的理解很差,可能会增加患痴呆症等疾病的风险.
- 现有的支持服务被发现与自闭症特征不兼容,通常是由于缺乏专业理解和可访问性问题.
结论:
- 显著需要增强社会对自闭症衰老的知识.
- 服务需要适应,以获得自闭症信息,创伤信息,并专注于力量.
- 建议包括让自闭症患者参与服务设计,并为导航和访问提供同行支持.
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