患有炎症性肠病的青少年和青少年面临的独特挑战:全球视角
Irina Geiculescu1,2, Barbara Joanna Niklinska-Schirtz1,2, Sachith Munasinghe1
1Division of Pediatric Gastroenterology, Department of Pediatrics, Emory University School of Medicine & Children's Healthcare of Atlanta, Atlanta, GA, United States.
Inflammatory bowel diseases
|February 28, 2026
概括
儿科炎症性肠病 (IBD) 患者在获得医疗保健,药物可用性和护理过渡方面面临独特的障碍. 儿科IBD护理的全球差异凸显了全世界需要改进和公平的治疗策略的需要.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 慢性疾病管理 慢性疾病管理
- 获得医疗保健的差距 医疗保健的差距
背景情况:
- 患有慢性疾病的个人,如炎症性肠病 (IBD),面临着重大的全球医疗保健接入挑战.
- 与成人患者相比,患有IBD的青少年,特别是青少年 (9-12岁) 和青少年 (13-19岁),会遇到明显的障碍.
研究的目的:
- 审查和综合当前关于全球儿科IBD患者面临的挑战的证据.
- 突出区域特异性问题和儿科IBD护理的地理差异.
主要方法:
- 对当前证据进行全面审查.
- 全球儿科IBD临床医生的综合报告.
主要成果:
- 儿科IBD患者面临有限的药物治疗,难以过渡到成人护理,临床试验参与的障碍.
- 心理健康,与青春期相关的成长和社交媒体的影响是这一群体的重要额外关注点.
- 虽然许多挑战是普遍的,但护理的区域差异和地理差异明显.
结论:
- 解决儿科IBD患者独特的医疗保健需求对于改善结果至关重要.
- 缓解护理障碍,包括药物获取和过渡支持至关重要.
- 识别和解决地理差异对于实现公平的全球IBD儿童和青少年护理至关重要.
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