为自闭症谱系儿童的父母提供共享决策干预措施:系统和范围审查
Shely Khaikin1, Beth Pfeiffer2, Amber Pomponio Davidson2
1Shared Decision Making Laboratory, Temple University, Pennsylvania, Philadelphia, USA.
Community mental health journal
|March 2, 2026
概括
共享决策 (SDM) 干预措施对自闭症谱系障碍儿童的父母来说是有前途的,改善了对治疗选择的知识和参与. 然而,该领域的研究仍然有限,强调需要更多的研究.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 自闭症谱系障碍研究研究
- 健康决策的制定方法
背景情况:
- 患有自闭症谱系障碍 (ASD) 的孩子的父母面临着有限信息的复杂治疗决策.
- 共享决策 (SDM) 是一个合作过程,涉及临床医生,患者和家人,以做出基于证据的选择.
- 应用SDM干预措施专门用于ASD护理中的家长决策尚未得到充分理解.
研究的目的:
- 系统地审查和覆盖现有关于共享决策 (SDM) 干预措施的文献,以帮助父母为患有自闭症谱系障碍的儿童做出治疗决定.
- 确定关于SDM在ASD家长决策中的有效性和实施的研究现状.
主要方法:
- 在四个主要数据库 (PubMed,Embase,Web of Science,PsycInfo) 和两个临床试验注册表中进行了系统和范围审查.
- 研究选择涉及标题/摘要选,然后对已识别的记录进行全文审查.
- 数据提取的重点是针对患有自闭症的18岁以下儿童的父母的多组件SDM干预措施.
主要成果:
- 在7610个确定的记录中,只有两项研究符合纳入标准,这两项都描述了多组件SDM干预措施.
- 包括来自澳大利亚和意大利的干预措施,对父母对自闭症治疗方法 (例如语音病理学,早期强化行为干预) 的知识和参与治疗讨论产生了积极影响.
- 关于SDM干预措施的研究存在一个显著的差距,该干预措施是针对自闭症护理背景下的家长决策的.
结论:
- 目前关于ASD儿童父母的SDM干预措施的证据很少,尽管父母在治疗选择中发挥着关键作用.
- 现有的干预措施有限,显示出父母知识和参与治疗决策的潜在好处.
- 迫切需要开发和严格评估基于证据的SDM干预措施,以支持家长为孩子的自闭症护理做出明智的决定.
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