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Updated: Apr 8, 2026

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公平的数据缺口和血红蛋白病研究中心之间的合作意愿

Stella Tamana1, Kristia Yiangou2, Kalia Orphanou1

  • 1Department of Blood Disorder Genetics and Thalassemia, The Cyprus Institute of Neurology and Genetics, Nicosia, Cyprus.

Scientific data
|March 3, 2026
PubMed
概括

血红蛋白病的研究需要更好的数据共享. 大多数中心缺乏FAIR数据原则,但愿意在乳血病和状细胞疾病的数据倡议上进行合作.

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