患有自闭症谱系障碍的孩子的母亲的经验
Daniele Mesquita Batista1, Ana Ricelly Pereira de Oliveira1, Lidiane Rossato Deckmann Nogueira1
1Universidade do Estado do Pará. Programa de Pós-Graduação em Enfermagem. Santarém. Pará. Brasil.
患有自闭症谱系障碍儿童的母亲面临着诸如未准备的专业人员和缓慢诊断等挑战. 他们制定内部和外部策略来导航母性,重新定义他们的经验.
科学领域:
- 心理学 心理学 心理学
- 发育儿科 发育儿科
- 社会工作 社会工作 社会工作
背景情况:
- 作为一个患有自闭症谱系障碍 (ASD) 的孩子的母亲,面临着独特的挑战.
- 早期发现异常发育对于及时干预至关重要.
研究的目的:
- 探索患有自闭症儿童的母亲所遇到的困难.
- 确定这些母亲使用的应对机制和策略.
主要方法:
- 一个定性描述性的研究,利用灵敏的创意方法和"知识树"的动态.
- 从13名患有自闭症儿童的母亲那里收集的数据,并使用法语话语分析进行分析.
主要成果:
- 母亲对早期迹象的感知触发了对答案的艰难寻找.
- 挑战包括不准备的医疗保健提供者,诊断延迟,以及母亲的内,否认和绝望.
- 母亲开发内部 (耐心,弹性) 和外部 (支持,疗法) 策略来管理母性.
结论:
- 自闭症谱系障碍大大重新定义了母亲的过程.
- 提高对母亲需求的知名度,提供合格的支持和专业培训至关重要.
- 提高母亲,儿童和母亲护理动态的生活质量是关键的结果.
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