相关实验视频
在住院期间,护理人员对儿科慢性复杂疾病的看法:不可预测性,信心,息治疗和结合
Camila Padula Domingues1, Aline Maria de Oliveira Rocha2, Rafaela Moura de Souza1
1Department of Pediatrics, Universidade Federal de São Paulo (UNIFESP), São Paulo, Brazil.
Journal of pediatric nursing
|March 4, 2026
概括
患有慢性疾病的儿童的照顾者面临着挑战,在精神和支持网络中寻找力量. 整合情绪和精神护理对于家庭导航儿科住院治疗和息护理至关重要.
科学领域:
- 儿科护理 儿科护理
- 家庭照顾 家庭照顾
- 心理社会瘤学
背景情况:
- 慢性儿童疾病给照顾者带来了巨大的情绪负担.
- 儿科住院加剧了家庭应对复杂疾病所面临的挑战.
研究的目的:
- 探索护理人员在住院期间对孩子的疾病所赋予的意义.
- 了解照顾者的主观经验和感知.
主要方法:
- 对24名患有复杂慢性疾病儿童的照顾者进行了定性探索性研究.
- 通过半结构面试收集的数据,并使用巴丁的内容分析进行分析.
主要成果:
- 主要主题包括疾病的不可预测性,无能,精神作为应对机制,支持网络的重要性以及儿童作为力量来源.
- 护理人员报告说,他们感到恐惧,过度负担和不安全感.
- 走向息护理建设的道路被确定为经验的重要方面.
结论:
- 慢性病的护理经历是复杂的,涉及到严重的情感和精神痛苦.
- 情感和精神上的支持,包括基于信仰的应对,应该整合到日常护理中.
- 关于息治疗的明确,富有同情心的沟通从疾病的早期阶段起至关重要.
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