在PICU出院后的前9个月里,家庭的护理和支持需求:一个多中心,纵向,定性研究
Joseph C Manning1, Emma Popejoy2, Jos M Latour3
1School of Healthcare, University of Leicester, Leicester, UK; Nottingham Children's Hospital, Family Health Care Group, Nottingham University Hospitals NHS Trust, Nottingham, Nottinghamshire, UK.
Intensive & critical care nursing
|March 4, 2026
概括
儿童重症监护室出院后的9个月内,家庭面临着复杂的,未得到满足的需求,随着大流行恶化的挑战. 综合支持对于恢复至关重要.
科学领域:
- 儿科重症监护医药 儿科重症监护医药
- 家庭为中心的护理.
- 儿科的重症监护后综合征 (PICS-p)
背景情况:
- 儿科重症监护室 (PICU) 的幸存者及其家属在出院后面临重大挑战.
- 儿科重症监护后综合征 (PICS-p) 框架突出了影响儿童和家庭的多方面的疾病.
- 了解家庭需求对于制定有效的PICU后护理策略至关重要.
研究的目的:
- 探索孩子在PICU退院后的9个月内家庭的经验和支持需求.
- 应用PICS-p框架来了解这些家庭不断变化的需求.
- 识别当前护理和支持系统中的差距.
主要方法:
- 在OCEANIC混合方法试验中的定性嵌入式研究.
- 针对七个英格兰PICU的40个家庭进行了有目的的抽样.
- 离院后1-3个月和6-9个月与父母,孩子和兄弟姐妹进行半结构面试,使用框架分析进行分析.
主要成果:
- 57名参与者 (45名父母,11名孩子,1名兄弟姐妹) 接受了采访.
- 家庭报告了身体,认知,情感和社会领域的多方面的相互依赖需求.
- 关键的未满足需求包括缺乏协调后续,心理困扰,认知负担和财务压力,由COVID-19大流行加剧.
结论:
- 家庭经历复杂的,不断发展的,往往未满足的需求后PICU放电,跨越PICS-p领域.
- 疫情加剧了这些需求,揭示了退院后支持和护理连续性的系统性差距.
- 综合,以家庭为中心的服务,解决身体,心理和社会需求是必不可少的,除了例行PICS-p查和改善沟通.
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