探索家庭运作的变化:对风湿性关节炎患者的定性研究
Hossein Sadeghnezhad1, Hakimeh Sabeghi1, Seyyed Abolfazl Vagharseyyedin1
1Department of Nursing, Faculty of Nursing and Midwifery, Birjand University of Medical Sciences, Birjand, Iran.
Patient preference and adherence
|March 5, 2026
概括
类风湿性关节炎 (RA) 显著影响家庭的运作,减少独立性并造成财务压力. 了解这些变化对于为RA患者开发有效的以家庭为中心的护理和支持系统至关重要.
科学领域:
- 类风湿病学 类风湿病学
- 家庭研究 家庭研究
- 定性研究是一种定性研究.
背景情况:
- 类风湿性关节炎 (RA) 是一种慢性炎症性疾病,影响身体,心理和家庭福祉.
- 家庭的运作是照顾的核心,特别是在有着强大的家庭关系的文化中.
- 由于RA,对家庭运作的具体变化存在有限的研究.
研究的目的:
- 探索患者的生活经验和对由类风湿性关节炎 (RA) 引起的家庭功能变化的看法.
主要方法:
- 传统的内容分析来自伊朗的19名故意选择的参与者的数据.
- 面对面,半结构化,深度采访进行,直到数据和.
- 数据分析使用了格兰海姆和隆德曼的方法,使用了MAXQDA软件.
主要成果:
- 在家庭运作中出现了六个主要类别的变化.
- 其中包括功能独立性降低,婚姻和育儿角色受损,财务负担增加,社会活动限制和心理痛苦.
- 患者报告说,由于RA,家庭动态受到重大干扰.
结论:
- 类风湿性关节炎严重扰乱了家庭的运作,特别是在像伊朗这样有着强烈的护理传统的文化中.
- 研究结果强调了以家庭为中心的干预和心理社会支持的必要性.
- 卫生政策应既关注患者护理,又关注整体家庭福祉.
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