实施一种新型患者报告的结果措施,用于评估患有慢性病的儿童的症状 (PRO-Kid) - 计划报告
Banke Oketola1, Karma Abukasm2, Ke Fan Bei3
1University of Manitoba, Children's Hospital Research Institute of Manitoba, Winnipeg, Canada.
Canadian journal of kidney health and disease
|March 5, 2026
概括
PRO-Kid工具有效地测量慢性病 (CKD) 的儿童的症状,改善患者和提供者之间的沟通. 进一步验证正在进行中,以确保多样化的儿科患者群体获得公平的机会.
科学领域:
- 儿科脏病学 儿科脏病学
- 健康 结果 研究 研究 结果
- 实施科学 实施科学
背景情况:
- 患有慢性病 (CKD) 的儿童会出现显著的身体和心理症状.
- 患者报告结果 (PRO) 测量工具对于量化症状和增强沟通至关重要.
- PRO-Kid工具是为了满足儿童慢性病患者的这些需求而开发的.
研究的目的:
- 将新的PRO-Kid工具应用于加拿大各地的儿科CKD和透析计划.
- 评估组织是否准备好实施PRO工具.
- 用既定框架评估实施结果.
主要方法:
- 该PRO-Kid工具,一个为8-18岁的14项调查问卷,在加拿大七个儿科脏病学项目中实施.
- 使用实施研究综合框架 (CFIR) 评估了组织的准备.
- 通过审计,调查和重点小组,使用覆盖范围,有效性,采用,实施和维护 (RE-AIM) 框架评估了实施结果.
主要成果:
- 该PRO-Kid工具显示出强大的内部一致性和有效性 (Cronbach的α> .83).
- 初步评估表明,该工具易于使用,对患者和医疗保健提供者来说都是令人满意的.
- 关键促进者包括当地冠军,而障碍包括语言,低阅读水平和临床工作人员的可用性.
结论:
- 在儿童慢性病护理中,PRO-Kid工具可以改善沟通和症状识别.
- 不同年龄版本和翻译的持续验证将确保更广泛的适用性和公平的访问.
- 整合到临床环境中需要当地团队积极发挥作用,以获得成功的采用和可持续性.
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