探索基于叙事的方法在患有肌缩性侧面硬化症的个体的使用:一个叙事审查
1Palliative Care, University of Maryland Baltimore Graduate Studies in Palliative Care, Baltimore, MD, USA.
Palliative & supportive care
|March 5, 2026
概括
基于叙事的方法为患有肌缩性侧面硬化症 (ALS) 的人的经历提供了宝贵的见解. 这些方法有助于了解心理社会需求,并改善面临逐步衰退的个体的以患者为中心的护理.
科学领域:
- 医学社会学 医学社会学
- 健康心理学 心理健康心理学
- 定性研究方法 定性研究方法
背景情况:
- 基于叙事的方法被用来理解慢性疾病的经历.
- 患有肌缩性侧面硬化症 (pALS) 的人因逐渐衰退而面临身份挑战.
- 了解pALS体验对于解决他们的心理社会需求至关重要.
研究的目的:
- 在涉及pALS.的研究中审查基于叙事的方法的应用.
- 为了更深入地了解pALS.的经验和心理社会需求.
- 探索叙事方法如何为pALS提供以患者为中心的护理.
主要方法:
- 在EMBASE,CINAHL,PsycInfo和谷歌学者中进行系统的文献搜索.
- 收录标准:英语语言,叙事制作方法,pALS.特定的数据.
- 数据提取和分类叙事方法和确定的主题.
主要成果:
- 确定了4类叙事方法:心理社会干预,疾病经验,有针对性的干预和数据分析.
- 常见的主题包括功能丧失,适应,身份转变和医疗保健系统相互作用.
- 尽管存在沟通挑战,但对于pALS来说,叙事方法是可行的.
结论:
- 基于叙事的方法是研究pALS的有效工具.
- 这些方法为pALS的实践经验提供了关键的见解.
- 实施可以导致改善以患者为中心的干预措施,解决心理社会需求.
相关概念视频
01:15Parkinson's Disease: Overview
2.3K
Neurodegenerative disorders are progressive diseases that cause irreversible damage and loss to neurons in specific brain areas. Examples of these disorders include Parkinson's disease, Alzheimer's disease, Multiple Sclerosis (MS), and Amyotrophic Lateral Sclerosis (ALS). These disorders share characteristics such as proteinopathies, selective neuronal vulnerability, and a complex interplay between genetic and environmental factors. The primary therapeutic goal for these conditions is...
2.3K
01:26Alzheimer's Disease: Overview
1.9K
Alzheimer's Disease (AD) is a continually advancing neurodegenerative disorder, distinguished by escalating memory loss, cognitive dysfunction, and dementia. The disease unfolds in three stages: preclinical, mild cognitive impairment (MCI), and dementia. Its onset is insidious, and the progression gradual, with the cause not well explained by other disorders.
The clinical diagnosis of AD hinges on the presence of memory and other cognitive impairments. Biomarkers, such as changes in Aβ...
The clinical diagnosis of AD hinges on the presence of memory and other cognitive impairments. Biomarkers, such as changes in Aβ...
1.9K