医疗复杂性儿童的医院到家庭过渡的创新性过渡期护理单位:父母经验的定性研究
Heleen N Haspels1,2,3,4, Nicole Skomorowski5, Koen F M Joosten3,4
1Department of Pediatric Intensive Care, Amsterdam UMC, location AMC, Amsterdam, the Netherlands.
Child: care, health and development
|March 5, 2026
概括
父母发现过渡期护理单位 (TCU) 对于医疗复杂性儿童 (CMC) 的医院到家庭 (H2H) 过渡非常有价值. 该研究确定了改善未来护理策略的关键促进者和障碍.
科学领域:
- 儿科医疗保健服务 儿科医疗保健服务
- 过渡期护理是指过渡期的护理.
- 家庭为中心的护理.
背景情况:
- 医疗复杂性儿童 (CMC) 的医院到家庭 (H2H) 过渡对家庭构成重大挑战.
- 耶鲁恩坑房 (JPH) 是一个创新的,独立的过渡期护理单位 (TCU),旨在加强这些过渡.
研究的目的:
- 探索家长对H2H过渡的经验,这是由JPH TCU促进的.
- 确定影响CMC过渡过程的促进者和障碍者.
主要方法:
- 使用半结构面试对CMC的家长进行定性研究.
- 对面试数据进行主题分析,直到达到主题和.
主要成果:
- 21名家长参加了14次采访.
- 五个关键过程出现了:恢复控制,情绪恢复,家庭适应,导航系统和儿童福祉.
- 促进者包括TCU支持,专业指导,家庭赋权和协调系统.
- 障碍包括隐私问题,情绪紧张,家庭公平以及系统性挑战.
结论:
- 在H2H过渡期间,TCU环境被认为对儿童和家庭福祉有益.
- 了解促进者和障碍因素,有助于为CMC开发有效的过渡期护理模式.
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