艾滋病毒感染者的社会生活数据
Anthony K J Smith1,2,3, Daniel Storer4,5,6, Alexander McClelland7
1Centre for Social Research in Health, UNSW Sydney, Sydney, New South Wales, Australia anthony.smith@unsw.edu.au.
Medical humanities
|March 5, 2026
概括
了解艾滋病毒数据的社会生活对公共卫生至关重要. 本综述探讨了数据殖民主义和数据正义等概念,以促进道德和反思性的艾滋病毒数据实践.
科学领域:
- 公共卫生 公共卫生
- 传染病流行病学 传染病流行病学
- 数据科学 伦理学 数据科学
背景情况:
- 数据对于公共卫生和管理艾滋病毒等传染病至关重要.
- 关于数据生成,存储,分析及其对现实的反映存在紧张关系.
研究的目的:
- 为了解艾滋病毒公共卫生数据的社会生活提供关键概念的概述.
- 倡导对伦理和反思性的HIV数据实践给予批判性关注.
主要方法:
- 关于与数据的社会生活相关的概念的文献综述.
- 探索数据化,数据殖民主义,数据主权,数据正义,数据能力,数据表现性和反射性.
主要成果:
- 确定了塑造艾滋病毒社会生活的关键概念.
- 强调了有关数据治理,公平性和边缘化群体的担忧.
- 强调了数据和社会世界之间的递归关系.
结论:
- 对"艾滋病毒数据的社会生活"的批判性关注是必不可少的.
- 在产生和利用艾滋病毒数据方面促进道德和反思性实践.
- 倡导将数据含义和社会影响的过程放在中心.
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