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"我们通过撞墙来学习"父母与水脑儿童的经验:一种定性研究
Mustafa Volkan Düzgün1, Büşra Nur Temür2, Ayşegül Işler1
1Department of Pediatric Nursing, Faculty of Nursing, Akdeniz University, Antalya, Turkey.
Scandinavian journal of caring sciences
|March 9, 2026
概括
患有水头的孩子的父母经历了重大的情感和心理斗争. 了解他们的应对机制和支持需求对于改善护理和赋予家庭权力至关重要.
科学领域:
- 儿科护理 儿科护理
- 质量健康研究 质量健康研究
- 家庭照顾 家庭照顾
背景情况:
- 水脑症对儿童及其家人来说带来了独特的挑战.
- 父母在照顾患有慢性疾病的孩子方面的经验往往是复杂和多方面的.
- 了解父母的生活经验对于开发有效的支持系统至关重要.
研究的目的:
- 探索养育患有水头的孩子的父母的感受,思想和经验.
- 识别这些家长面临的情感和心理斗争.
- 了解父母使用的应对和创造意义的过程.
主要方法:
- 使用了一种描述性的现象学定性方法.
- 数据是通过对10名家长进行半结构化个人访谈来收集的.
- 专题分析是使用Colaizzi的七步方法进行的.
主要成果:
- 两个主要主题出现了:情感和心理上的斗争和应对和创造意义的过程.
- 副主题包括情绪反应,未来的担忧,访问障碍,心理影响,支持系统,诊断理解,接受,精神意义,个人成长和成熟.
- 父母在开发适应性应对策略的同时,也面临着巨大的情绪负担.
结论:
- 父母在照顾患有水头的儿童方面的赋权是一个未得到充分解决的领域.
- 深入了解父母的经历可以为更好的支持机制提供信息.
- 获得支持和信息有助于父母应对挑战.
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