支持加拿大残疾儿童家庭:未得到满足的需求和服务差距
K Pozniak1,2, A Swain1,2, M Rodrigues3
1CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada.
Frontiers in public health
|March 9, 2026
概括
许多加拿大残疾儿童在娱乐和经济支持等基本服务方面面临着未得到满足的需求. 改善儿童和家庭福祉需要更好地协调医疗保健,教育和社会服务.
科学领域:
- 儿童健康研究 儿童健康研究
- 提供残疾人服务.
- 家庭支持系统 家庭支持系统
背景情况:
- 加拿大的儿童和家庭福利已经下降.
- 患有残疾/慢性疾病的儿童需要强大的支持系统.
- 现有的服务可能无法充分满足这些家庭的需求.
研究的目的:
- 确定加拿大残疾儿童及其家庭的当前和未来支持需求.
- 评估现有服务如何满足这些需求.
- 为改进支持策略的制定提供信息.
主要方法:
- 顺序的探索性研究设计.
- 第二阶段涉及72名残疾儿童和青少年的家长/照顾者/有医疗保健需求的调查.
- 评估学校,社区,医疗,娱乐,家庭和金融领域的需求.
主要成果:
- 超过一半 (52.5%) 的受访者报告至少有一个未满足的需求.
- 娱乐,财务和家庭支持显示出最大的差距.
- 虽然大多数受益者对服务感到满意,但不满意度在6%-42%之间,具体取决于服务类型.
结论:
- 相当数量的加拿大残疾儿童及其家属遇到未满足的需求.
- 差距在娱乐,财务和家庭支持领域最为明显.
- 在医疗保健,教育和社会服务方面采取协调,综合的系统方法对于终身支持至关重要.
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