癌症移动应用程序的使用:以年轻成年患者为中心的方法
Sarah E Piombo1, Cristina Pozo-Kaderman2,3,4, Sarah Fay Concannon2
1Department of Medical Oncology, Dana-Farber Cancer Institute, Boston, MA, USA.
Journal of psychosocial oncology
|March 10, 2026
概括
患有癌症的青少年和年轻人 (AYA) 主要寻求与同龄人的社交联系,而不是信息. iaya移动应用程序显示了AYA之间建立社区的强烈愿望,强调了需要可扩展的心理社会支持.
科学领域:
- 青少年和年轻成年人 (AYA) 瘤学
- 数字健康干预措施 数字健康干预措施
- 心理社会支持系统 心理社会支持系统
背景情况:
- 患有癌症的青少年和年轻人 (AYA) 面临着独特的心理社会挑战,包括发育和社会功能受损.
- 在AYA的癌症护理连续过程中,社会联系和量身定制的支持存在重大未满足的需求.
- 现有的癌症护理模式往往缺乏可访问和可扩展的计划,以满足AYA的多维需求.
研究的目的:
- 描述iaya的发展和影响,iaya是一个创新的移动应用程序,专为癌症患者设计.
- 评估平台在促进应对和促进用户之间的同行联系方面的能力.
- 通过提供以患者为中心,可访问和可扩展的解决方案来解决AYA心理社会支持的关键缺口.
主要方法:
- 为iaya平台收集数据发生在2021年底至2024年12月.
- 用描述性统计数据分析用户参与度,增长趋势和人口统计数据.
- 应用程序功能利用和与心理社会应对工具箱的参与得到了总结.
主要成果:
- 该iaya应用程序显示了稳定的增长,拥有超过280名总会员和180名活跃用户 (66%的参与率).
- 用户主要参与讨论和社交功能,表明他们更喜欢同行互动.
- 在社交空间的参与度超过了应用程序的信息或特定资源部分.
结论:
- 患有癌症的AYA表现出强烈的偏好与同龄人建立社交联系,超过他们对癌症相关信息的需求.
- 促进社会联系的在线平台是AYA非常想要和使用的.
- 未来的AYA心理社会瘤学计划应优先考虑社区建设和社会联系,并可能将移动应用程序纳入可扩展的支持策略.
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