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患者对炎症性肠病的知识和意识,因为它演变为全球性疾病:一个范围审查
Arshdeep Singh1, Arshia Bhardwaj1, Anuraag Jena2
1Department of Gastroenterology, Dayanand Medical College and Hospital, Ludhiana, Punjab, India.
患者对炎症性肠病 (IBD) 的了解至关重要,但在全球范围内往往缺乏. 本次审查强调了IBD识字方面的重大差距,特别是在疾病特异性和治疗方面,需要改进教育策略.
科学领域:
- 胃肠病学 胃肠病学
- 卫生识字 卫生识字
- 患者教育 患者教育
背景情况:
- 患者的知识对于有效的炎症性肠病 (IBD) 管理至关重要.
- 教育机会和患者对IBD的理解在全球范围内有很大差异,影响疾病的结果.
研究的目的:
- 对有关IBD患者知识的现有证据进行范围审查.
- 探索IBD患者知识的区域和人口差异.
- 识别知识差距,并为文化适应性教育干预措施的开发提供信息.
主要方法:
- 在PubMed和Embase进行了全面的文献搜索,截至2025年12月31日,遵守PRISMA-ScR指南.
- 评估IBD患者知识的合格成人和儿科研究被选和合成.
- 关键知识领域包括疾病基础,治疗,并发症,结直肠癌风险,手术,疫苗接种和饮食.
主要成果:
- 包括53项研究,使用诸如CCKNOW,IBD-KNOW,IBD-KID和IBD-KID2之类的工具.
- 在解剖学,CRC风险和阿扎西奥普林等特定治疗等领域观察到低于最佳的知识.
- 对疫苗接种和饮食相关性的认识有限;胃肠科医生是主要的信息来源.
结论:
- 全球IBD知识和意识不足,在各地区和知识领域分布不一致.
- 显然需要更新,文化敏感的评估工具和多学科,技术增强的教育策略来提高IBD识字能力.
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