新西兰用于心血管研究的电子健康数据:一篇评论
Anna E Møller1, Rod Jackson2, Andrew J Kerr2,3,4
1Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.
新西兰新西兰新西兰新西兰
科学领域:
- 医疗信息学 医疗信息学
- 心血管流行病学心血管流行病学
- 公共卫生 数据科学 数据科学
背景情况:
- 新西兰阿托亚罗亚利用个人级别的链接电子健康数据进行心血管研究.
- 一个强大的健康数据基础设施支持大规模的基于注册表的研究,包括观察性研究和务实的临床试验.
研究的目的:
- 审查新西兰电子健康数据的范围和实用性,用于心血管研究.
- 评估新西兰心血管疾病的人口和流行病学趋势.
- 将新西兰的数据资产与国际同行 (北欧国家,英国) 进行比较.
主要方法:
- 分析全国范围的行政注册,临床质量注册和研究人员发起的注册.
- 评估数据覆盖范围,内容,链接能力和质量.
- 探索示例应用以及道德,法律和基础设施方面的考虑.
主要成果:
- 新西兰的健康数据来源提供了关于医疗保健服务,临床实践和社会决定因素的全面信息.
- 可链接的注册表,特别是由研究人员发起的队列,对于观察性研究,临床试验和风险建模具有很高的实用性.
- 健康数据基础设施显示出国际心血管研究合作的潜力.
结论:
- 新西兰的电子健康数据是心血管研究的宝贵资源.
- 这些数据支持观察研究和临床试验,推动了心血管科学.
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