验证ANCA相关血管炎患者报告结果问卷的德语版本
Amelie Niesmann1, Miriam Jacobs1, Tim Filla1
1Department of Rheumatology, University Hospital Düsseldorf, Medical Faculty of Heinrich Heine University Düsseldorf; and Hiller Research Center, University Hospital Düsseldorf, Medical Faculty of Heinrich Heine University Düsseldorf, Germany.
Clinical and experimental rheumatology
|March 11, 2026
概括
德国ANCA相关的血管炎患者报告结果 (AAV-PRO) 测量结果显示了评估患者体验的良好可靠性和有效性. 虽然一般有用,但在临床实践中需要仔细解释两个特定领域.
科学领域:
- 类风湿病学 类风湿病学
- 临床心理学 临床心理学
- 健康 结果 研究 研究 结果
背景情况:
- 与ANCA相关的血管炎 (AAV) 显著影响患者的生活质量.
- 患者报告的结果指标 (PROM) 对于评估AAV管理至关重要.
- 为了在德语人口中使用,需要验证AAV-PRO的德语版本.
研究的目的:
- 为了验证德国版本的ANCA相关血管炎患者报告结果 (AAV-PRO) 测量.
- 评估德国AAV-PRO的心理测量特性,包括可靠性和有效性.
- 评估AAV-PRO在一组德语系AAV患者中的表现.
主要方法:
- 涉及德语系AAV患者的前性队列研究.
- 在三个时间点管理29项的AAV-PRO (德语).
- 同时使用EuroQol-5D-5L (EQ-5D-5L),医生评估的BVASv3和VDI,以及自我报告的疾病状态.
主要成果:
- 70名AAV患者参与;疲劳是最常见的症状.
- 德国的AAV-PRO在大多数领域表现出良好的内部一致性和高的测试-重新测试可靠性.
- 构造有效性得到了EQ-5D-5L的相关性支持,尽管与BVASv3 / VDI的相关性有限.
结论:
- 德国的AAV-PRO是对AAV患者的有效和可靠的衡量标准.
- 该措施支持对AAV中患者报告结果的评估.
- 德国AAV-PRO的两个特定领域在临床应用中需要谨慎解释.
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