重要但脆弱:在年轻人之间建立非正式的支持网络,以应对长期的COVID
Zaira Clarke1, Hannah Cowan1, Tim Rhodes1
1London School of Hygiene and Tropical Medicine, London, UK.
概括
患有长期Covid的年轻人创建和维护非正式的护理网络,以验证和支持. 这些重要网络很脆弱,需要与正式医疗保健系统更好地整合.
科学领域:
- 社会科学 社会科学 社会科学
- 公共卫生 公共卫生
- 定性研究是指质量研究.
背景情况:
- 患有长期Covid的年轻人在获得医疗保健和社会支持方面遇到了挑战.
- 之前的英国研究强调了长期Covid体验的"失效"和"双重隐形"由于效应最小化和缺乏意识.
- 这项研究探讨了年轻人如何在网上自助小组之外的替代护理网络中进行导航和维护.
研究的目的:
- 研究长期Covid的年轻人如何建立和维持多个地点的替代护理网络.
- 了解这些非正式网络在管理长期Covid的日常经历中的作用.
- 确定这些自我创建的支持系统的挑战和优势.
主要方法:
- 涉及54名年轻人 (15-25岁) 长期COVID-19健康影响的定性研究.
- 30名参与者参与了后续采访.
- 与同行研究人员合作,分析采访成绩单,包括不同的种族身份,性别以及神经多样性或残疾的人.
主要成果:
- 非正式网络对于患有长期Covid的年轻人至关重要,提供验证和物质支持.
- 这些网络是由年轻人积极"运作"的,他们投入了努力来建立和维护这些网络.
- 调查结果突出了四个主题:验证,物质差异,网络建设工作和网络脆弱性.
结论:
- 非正式护理网络至关重要但脆弱,需要加强和与正式护理整合.
- 替代护理网络不应该仅仅是为了弥补不充分的正式医疗保健.
- 需要整合正式和非正式护理的基础设施,以应对年轻人长期的Covid经历.
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