患有炎症性肠病的年轻成年人的疾病经验和应对策略:一种定性研究
Jiaqi Zhang1, Shurong Ren1, Wenqin Ding1
1Department of Gastroenterology, The First Affiliated Hospital with Nanjing Medical University, Nanjing, Jiangsu, China.
Frontiers in pediatrics
|March 12, 2026
概括
患有炎症性肠病 (IBD) 的年轻人面临复杂的情绪,需要支持. 积极应对可以促进个人成长,强调以患者为中心的护理对管理IBD的重要性.
科学领域:
- 胃肠病学 胃肠病学
- 心理学 心理学 心理学
- 患者体验 患者体验
背景情况:
- 炎症性肠病 (IBD) 显著影响年轻成年人.
- 了解这一人口群体的IBD生活经验对于有效管理至关重要.
研究的目的:
- 探索患有IBD的年轻成年人的疾病经验.
- 确定IBD的年轻成年人使用的应对策略.
- 为年轻IBD成年人提供患者管理策略的信息.
主要方法:
- 使用半结构面试的现象学方法.
- 针对20名年龄在18-29岁的IBD患者进行了有目的和雪球采样.
- 科拉伊兹的定性数据分析方法.
主要成果:
- 患有IBD的年轻人经历了复杂的负面情绪,包括焦虑和日常生活中断.
- 应对策略从积极参与到被动避免各不相同.
- 确定了家庭,专业人士和社交网络的多层次外部支持的重大需求.
结论:
- 患有IBD的年轻人对他们的疾病表现出复杂的情绪反应.
- 积极应对策略可以促进个人发展,超越疾病前的身份.
- 建议以患者为中心的方法促进自给自足和外部支持,用于IBD患者管理.
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