患有状细胞疾病的青少年的低自尊:决定因素和应对机制;混合方法研究
Janipher Nakabuye1, Wani Muzeyi1, Annet Nakirulu2
1Department of Pediatrics and Child Health, Makerere University College of Health Sciences, Kampala, Uganda.
PloS one
|March 12, 2026
概括
低自尊影响了乌干达21.6%患有状细胞疾病 (SCD) 的青少年. 支持健康生活方式和社会参与的干预措施可以改善这些脆弱年轻人的自尊.
科学领域:
- 青少年健康 青少年健康
- 心理健康 心理健康
- 遗传性疾病 遗传性疾病
背景情况:
- 状细胞疾病 (SCD) 是一种普遍影响全球青少年的遗传疾病.
- SCD显著影响青少年的心理健康,特别是自尊.
- 关于乌干达SCD青少年自尊的数据有限.
研究的目的:
- 确定乌干达SCD青少年低自尊的流行情况.
- 为了确定与低自尊心相关的因素在这个人群中.
- 探索SCD青少年使用的应对机制.
主要方法:
- 进行了一项连续的解释性混合方法研究.
- 从356名青少年使用罗森伯格自尊度量表收集的定量数据.
- 通过采访青少年和卫生工作者收集的定性数据,使用专题分析进行分析.
主要成果:
- 低自尊的患病率为21.6%.
- 经常缺学和身体活动的限制与更高的患病率有关.
- 有限的社会参与与低自尊心的风险增加有关.
结论:
- 患有SCD的青少年面临着低自尊的显著风险.
- 干预措施应侧重于促进健康的生活方式,药物坚持和社会参与.
- 加强同行支持和社会参与可以提高SCD青少年的自尊.
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