探索青少年癌症患者的青少年兄弟姐妹对数字单次干预的偏好
Christina M Amaro1, Sarah Silver1, Prishi Patel1
1Department of Pediatrics, Rutgers Cancer Institute, New Brunswick, New Jersey, USA.
Pediatric blood & cancer
|March 13, 2026
概括
数字干预可以帮助癌症儿童的青少年兄弟姐妹应对心理社会挑战. 这项研究收集了兄弟姐妹,父母和专业人士的意见,以创建一个定制的,可访问的数字支持工具.
科学领域:
- 心理学 心理学 心理学
- 在瘤学瘤学.
- 数字健康数字健康
背景情况:
- 患有癌症儿童的青少年兄弟姐妹面临着重大的心理社会风险.
- 时间,资源和人员等障碍限制了获得传统支持的机会.
- 数字化,自我引导,单次干预 (SSI) 提供了一个可扩展的解决方案.
研究的目的:
- 收集来自青少年兄弟姐妹,父母和专业人士的观点.
- 为了告知数字化,自动引导的兄弟SSI的发展.
- 根据兄弟姐妹的具体需求调整干预措施.
主要方法:
- 使用与兄弟姐妹 (n=22),父母 (n=21) 和提供者/领导者 (n=14) 进行半结构面试的定性研究.
- 根据现有的SSI,探索内容,语言,时间和交付的偏好.
- 内容分析总结了关键建议.
主要成果:
- 数字兄弟SSI被视为一个有前途的应对工具.
- 推内容包括承认扎,强调应对和个性化计划.
- 强调以兄弟为中心的语言,独家空间和早期传播.
结论:
- 调查结果为开发数字兄弟姐妹SSI提供了社区知情的指导.
- 旨在克服障碍,并改善对这些兄弟姐妹的心理社会支持.
- 提高心理健康支持的可访问性和有效性.
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