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从洞察到行动:以患者为中心的国家战略框架,改善先天性心脏病患者的生殖健康结果
Mindi Messmer1, Tripti Gupta2, Rohan D'Souza3
1Division of Cardiology Children's National Hospital Washington DC USA.
Journal of the American Heart Association
|March 13, 2026
概括
这项研究确定了怀孕的先天性心脏病 (CHD) 患者的国家优先事项. 关键目标包括改善获得专业护理的机会,提高临床质量,促进患者参与,以获得更好的结果.
科学领域:
- 心脏病学 心脏病学
- 产科 产科 产科 产科 产科
- 公共卫生 公共卫生
- 以患者为中心的护理
背景情况:
- 越来越多的先天性心脏病 (CHD) 患者正在怀孕.
- 在心血管疾病患者怀孕期间心血管并发症的风险增加.
研究的目的:
- 建立以患者为中心的国家研究和护理优先事项.
- 改善患有心脏病的人的怀孕相关结果.
主要方法:
- 混合方法研究使用利益相关者参与问题开发.
- 联盟参与,患者/提供者问卷,促进会议和虚拟焦点小组.
- 进行反思性的专题分析,以综合研究重点.
主要成果:
- 总体目标:改善获得专门的CHD/心脏-产科/心理健康护理,提高临床质量,增加患者参与度.
- 关键主题:医疗保健沟通,社区参与,辅助支持,患者报告的结果,知识动员.
- 短期目标:远程医疗,护理协调最佳实践,教育资源. 长期目标:项目扩展,心理健康整合,保险宣传.
结论:
- 国家,社区驱动的优先考虑,以改善心血管疾病中的妊娠结果.
- 持续的患者和社区参与对于心脏和产科护理,教育,研究和心理健康的持续改善至关重要.
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