了解患有先天性心脏病的青少年的脆弱性:一项二次现象学研究
Ching-I Chen1, Chen-Yan Huang2, Hung-Tao Chung3
1College of Nursing, National Yang Ming Chiao Tung University, Taipei, Taiwan; School of Nursing, College of Nursing, Tzu Chi University, Hualien, Taiwan.
Journal of pediatric nursing
|March 13, 2026
概括
脆弱性对患有先天性心脏病 (CHD) 的青少年产生重大影响,影响他们的日常生活,社会联系和自主权. 早期发现和量身定制的支持对于他们的福祉至关重要.
科学领域:
- 儿童心脏病学 儿童心脏病学
- 青少年健康 青少年健康
- 老年学 (适用于儿科)
背景情况:
- 患有先天性心脏病 (CHD) 的青少年经历了独特的挑战,影响了他们的发展和生活质量.
- 人们对这一群体的脆弱性存在担忧,但其对日常功能的影响尚不清楚.
研究的目的:
- 探索患有心血管疾病的青少年体验过的脆弱性.
- 了解主要护理人员对这些青少年脆弱的看法.
主要方法:
- 使用半结构面试进行的描述性现象学研究.
- 20个青少年-护理人员双组 (12-18岁患有心脏病) 参与.
- 使用弗里德的标准来评估脆弱性;通过科拉伊齐的方法分析数据.
主要成果:
- 六个主题出现了:身体负担,能量耗尽,社会判断,与疲劳相关的断开,节能策略和支持性关系.
- 虚弱影响身体健康,身份,自主和社会包容.
- 护理人员的看法强调了脆弱的多面性质.
结论:
- 患有心血管疾病的青少年的脆弱性需要对发育有反应性,基于关系的护理.
- 护士对于早期检测,评估和个性化干预至关重要.
- 在儿科心脏病学和青少年护理中,以脆弱性为基础的护理是必不可少的.
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