评估非癌症诊断的重症儿童的护理需求:一种定性研究
Christina Tempesta1, Erika Abramson2, Jennifer A Salant3
1Pediatric Critical Care Medicine, Department of Pediatrics, NewYork-Presbyterian/Weill Cornell Medicine, New York, NY, United States.
Journal of pain and symptom management
|March 14, 2026
概括
在儿科重症监护室 (PICU) 照顾孩子对家庭来说是一个重大挑战. 这项研究确定了关键的心理社会需求,包括需要存在,支持和承认兄弟姐妹的影响,以改善危急疾病期间的家庭福祉.
科学领域:
- 儿科重症监护医药 儿科重症监护医药
- 家庭为中心的护理.
- 心理社会支持 心理社会支持
背景情况:
- 儿科重症监护室 (PICU) 的入院对家庭来说是情感上的负担.
- 在孩子患重病期间,家庭面临许多心理社会挑战.
研究的目的:
- 探索患有重症儿科患者 (非癌症诊断) 的家庭的心理社会需求.
- 为这些家庭制定有针对性的支持策略和干预措施提供信息.
主要方法:
- 在一个大型城市的PICU中,与护理人员进行了20次一对一的采访.
- 使用常量比较分析方法来识别反复出现的主题.
主要成果:
- 确定了五个主要主题:家庭的存在义务,环境挑战,护理情感支持的重要性,对兄弟姐妹的影响以及普遍的恐惧/孤独感.
- 由于对病人的陪伴义务,家庭难以满足个人需求.
- PICU环境给护理人员和他们的孩子带来了困难.
结论:
- 制定了建议,以解决在PICU入院期间识别的家庭心理社会需求.
- 建议的干预措施,以减轻负面的心理社会影响和加强支持系统.
- 强调了包括息治疗专家在内的所有医疗保健团队成员在支持家庭中的作用.
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