"了解MDR/XDR-TB患者的经验和需求:一种定性转合成"
Mamta Choudhary1, Mamta2, Pushpa3
1College of Nursing, AIIMS, New Delhi, India.
The Indian journal of tuberculosis
|March 14, 2026
概括
耐多药结核病 (MDR-TB) 和广泛耐药结核病 (XDR-TB) 患者面临着重大的情感,社会和经济困难. 解决这些需求需要全面的,以人为中心的护理,超越临床治疗以改善福祉.
科学领域:
- 公共卫生 公共卫生
- 传染性疾病 传染性疾病
- 定性研究是指质量研究.
背景情况:
- 多抗药性和广泛抗药性结核病 (MDR/XDR-TB) 构成重大全球卫生挑战,特别是在印度等高负担国家.
- 现有的文献往往忽略了MDR/XDR-TB患者面临的深刻的心理社会,经济和系统性困难.
- 在综合的定性证据中存在着显著的差距,详细说明了接受药物耐药结核病治疗的个体的经历和特定需求.
研究的目的:
- 系统地审查和综合有关MDR/XDR-TB患者经验和需求的定性发现.
- 确定与患者痛苦,弹性和支持需求相关的共同主题.
- 为开发更全面,以患者为中心的MDR/XDR-TB治疗策略提供信息.
主要方法:
- 为了整合定性数据,采用了元合成方法.
- 系统审查了2015年至2024年6月期间发表的11项定性研究.
- 分析了来自8个国家的259名参与者的数据,以确定总体主题.
主要成果:
- 患者报告了严重的情绪困扰,社会耻辱,治疗副作用和经济压力.
- 心理性是患者体验的一个显著方面.
- 确定的主要患者需求包括获得准确信息,富有同情心的医疗保健,心理社会支持和财政援助.
结论:
- 患有MDR/XDR-TB患者的护理受到交织的心理社会,医疗和结构障碍的重大影响.
- 迫切需要全面,以人为中心的干预措施,解决护理的临床和非临床层面.
- 改善患者福祉和治疗结果需要综合支持系统,以适应耐药结核病患者多方面的需求.
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