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多发性硬化症患者对物理治疗和职业治疗的感知价值:从定性采访研究的见解

Heleen Beckerman¹, Jacqueline Pma Coppers², Isaline Cjm Eijssen¹

¹Amsterdam UMC, location Vrije Universiteit, Rehabilitation Medicine, MS Center Amsterdam, De Boelelaan 1118, 1081 HZ Amsterdam, the Netherlands; Amsterdam Public Health research institute, Social Participation and Health, PO BOX 7057, 1007 MB Amsterdam, the Netherlands.

Multiple sclerosis and related disorders

|March 15, 2026

概括

多发性硬化症 (MS) 患者高度重视持续的,个性化的物理治疗和职业治疗. 根据不断变化的个人需求和情况调整这些基本疗法是MS最佳管理和患者赋权的关键.

科学领域:

神经学神经学
康复医学康复医学康复医学
以患者为中心的护理

背景情况:

物理治疗,职业治疗和Cesar/Mensendieck运动治疗对于治疗多发性硬化症至关重要.
了解MS (PwMS) 患者如何在疾病进展过程中感知这些疗法的价值是有限的.
这项研究调查了整个多发性硬化症病程中PwMS的经验和治疗价值.

研究的目的:

探索MS患者在物理治疗,职业治疗和Cesar/Mensendieck治疗方面的生活经验和价值观.
了解这些价值观在疾病的整个生命周期中是如何演变的.
识别导致MS管理中积极治疗经验的因素.

主要方法:

进行了深度访谈,对23名MS患者进行了有意抽样.
用解释性现象学分析来分析数据,考虑上下文因素.
该样本代表了各种各样的治疗经验,以确保全面的含义提取.

主要成果:

患有多发性硬化症的人高度重视持续的物理治疗和职业治疗,特别是当个性化个体需求和疾病进展时.
五个核心主题出现了:患者价值观,治疗师属性,治疗关系,治疗特点和医疗保健合作.
治疗价值观是动态的和相互关联的,影响积极的经验,并赋予患者自主决策的权力.

结论:

持续的,个性化的物理治疗和职业治疗受到MS患者的高度尊重.
调整疗法以适应MS患者不断变化的需求,价值观和情况,对于有效的护理至关重要.
个性化治疗方法可以增强患者在管理病情方面的自主性和信心.

关键词:

盟国医疗保健盟国医疗保健运动治疗塞萨尔运动治疗运动治疗运动疗法运动疗法运动疗法 Mensendieckck 活着的经验,生活的经验.职业治疗是一种职业疗法.患者的价值是患者的值.个性化的护理个性化的护理物理治疗物理治疗定性研究是一种定性研究.

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