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在儿科瘤学中实施与健康有关的生活质量评估:可行性研究
Mikaela Doig1,2,3, Sophie Jessop2, Jordan R Hansford2,3,4
1School of Allied Health and Human Performance, Adelaide University, Adelaide, South Australia, Australia.
Pediatric blood & cancer
|March 16, 2026
概括
实施电子患者报告结果测量 (ePROM) 平台,以评估儿科癌症患者的与健康相关的生活质量 (HRQoL) 是可行的,并得到了良好欢迎. 该研究强调了这种数字方法在常规临床护理中的可用性和可接受性.
科学领域:
- 儿科瘤学 儿科瘤学
- 医疗信息学 医疗信息学
- 生活质量研究 研究 生命质量研究
背景情况:
- 越来越多的人对将与健康相关的生活质量 (HRQoL) 和患者报告的结果措施 (PROM) 纳入儿科癌症护理的兴趣越来越大.
- 需要评估数字工具,以简化对这一群体的HRQoL评估.
研究的目的:
- 评估电子PROM (ePROM) 平台的可行性,可接受性和可用性,以测量癌症儿童的HRQoL.
- 评估将ePROM数据集成到临床工作流程中的情况.
主要方法:
- 一项为期12个月的多中心混合方法研究,涉及患有癌症的儿童 (5-12岁),父母和临床医生.
- 在网上完成适合年龄的PedsQLTM通用核心尺度 (儿童和父母代理).
- 对家长和临床医生进行的评估调查,包括系统可用性量表 (SUS).
主要成果:
- PROM的高完成率 (总体为85%,儿童为88%,父母为62%).
- 优秀的可用性,平均SUS得分为88.6.6,表明了这种优异的可用性.
- 家长们发现该平台对孩子友好,并且有效地捕捉了相关的HRQoL方面.
结论:
- 通过ePROM平台进行例行HRQoL评估对于儿科癌症患者 (5-12岁) 是可行的,可接受的和可用的.
- 临床实用性的初步证据需要进一步的实施-有效性研究.
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