患者和胃肠科医生对性结肠炎诊断和治疗的看法之间的差异:一个多中心的回顾性研究
Zhenzhen Fan1, Ruixia Li1, Xin Liu2
1State Key Laboratory of Holistic Integrative Management of Gastrointestinal Cancers and National Clinical Research Center for Digestive Diseases, Xijing Hospital of Digestive Diseases, Fourth Military Medical University, Xi'an, Shaanxi, China.
医生和性结肠炎 (UC) 患者在疾病管理中存在显著的认知差距,患者优先考虑生活质量而不是临床指标. 将患者的优先事项纳入治疗计划对于有效的UC护理至关重要.
科学领域:
- 胃肠病学 胃肠病学
- 患者报告的结果
- 医疗服务研究 医疗服务研究
背景情况:
- 性结肠炎 (UC) 管理传统上依赖于医生的评估,这可能与患者的主观经验不一致.
- 这种差异可能会造成认知差距,可能会影响治疗决策和炎症性肠病护理的结果.
研究的目的:
- 调查和比较UC患者和胃肠科医生之间的认知差异.
- 分析关于疾病状况,治疗目标和决策模型的认知差异.
主要方法:
- 一项多中心的回顾性研究,涉及中国39个炎症肠病中心的全国调查.
- 457名UC患者和170名胃肠科医生填写了一份双向问卷,评估疾病管理的各个方面.
主要成果:
- 观察到显著的认知差距;医生专注于客观指标 (例如,血),而患者优先考虑主观症状 (例如,直肠急症).
- 治疗目标有所不同,患者重视生活质量,医生强调内镜治疗.
- 在随访偏好和决策模型中也发现了差异,患者表现出比医生预期的更愿意承担治疗费用.
结论:
- 目前的UC临床管理实践与中国患者的实践经验之间存在着显著的脱节.
- 临床实践应向纳入患者优先级的模型发展,以弥合这一差距并改善UC管理.
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