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Updated: Mar 18, 2026

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作为一个关于家族地中海热病的信息来源的YouTube
Cem Ozisler1, Ayse Bahar Kelesoglu Dincer2, Sevinc Can Sandıkcı1
1Department of Rheumatology, University of Health Sciences, Ankara Etlik City Hospital, Ankara, Turkey.
PeerJ
|March 16, 2026
概括
关于家族地中海热 (FMF) 的YouTube视频在质量和可靠性方面各不相同. 医生创建的内容提供了更有用的信息和更高的质量,突出了专家领导的FMF在线视频制作的需要.
科学领域:
- 医疗信息传播 医疗信息传播
- 数字健康数字健康
- 自燃性炎症疾病 自燃性炎症疾病
背景情况:
- 家庭地中海热 (FMF) 是一种普遍存在的遗传性自身炎症性疾病.
- 对于患者和医疗保健提供者来说,YouTube是重要的医疗信息来源.
- 评估YouTube上的FMF内容的质量和可靠性对于患者教育至关重要.
研究的目的:
- 评估有关家族地中海热病 (FMF) 的YouTube视频的内容,可靠性和质量.
- 根据有用性和遵守质量标准对视频进行分类.
主要方法:
- 在2023年11月26日,在FMF上对53个YouTube视频进行了系统审查.
- 视频质量和可靠性使用全球质量表 (GQS) 和DISCERN工具进行评估.
- 视频被分为有用/误导性信息和有用/误导性患者意见组.
主要成果:
- 超过62%的视频提供了有用的信息,26.4%的视频包含了误导性内容.
- 35.8%的视频被评为高质量,而39.6%的视频是低质量的.
- 医生上传的视频显示了显著更高的质量 (GQS,DISCERN) 和实用性 (p < 0.001).
结论:
- 在YouTube上,高质量和低质量的FMF视频混合在一起,从而冒着错误信息传播的风险.
- 风湿病专业人员应合作制作和发布高质量,准确的FMF视频内容.
- 在YouTube上增强专家的存在可以提高FMF患者和家属的健康素养.
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