来自INSAR特别利益小组 (SIG) 的答案的内容分析:关于自闭症的土著观点
Grant Bruno1,2,3, Annie Tang1,3, Troy Q Boucher4
1Department of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.
概括
土著自闭症研究需要非殖民化,文化知情和基于优势的方法. 未来的倡议必须由社区主导,优先考虑信任和合作,以更好地理解土著人口对自闭症的理解.
科学领域:
- 神经发育障碍 神经发育障碍
- 土著健康研究土著健康研究
- 基于社区的参与式研究
背景情况:
- 自闭症谱系障碍 (ASD) 在全球土著社区中被研究和检测不足.
- 现有的研究往往缺乏文化相关性和社区投入,造成了解和支持的障碍.
研究的目的:
- 分析土著社区自闭症研究的关键主题和未来方向.
- 确定文化敏感和有效的研究实践的基本要素.
主要方法:
- 在2025年国际自闭症研究协会会议上,特别利益小组的讨论内容分析.
- 包括服务提供商,自闭症自我倡导者,学者和利益相关者的各种国际观点.
主要成果:
- 强调非殖民化,文化知情和基于优势的研究方法至关重要.
- 建立信任,培养关系和合作伙伴关系对于成功的研究至关重要.
- 他们强调了土著和西方知识体系的整合,以及对土著领导的倡议的渴望.
结论:
- 需要在土著社区进行进一步的自闭症研究,转向以社区为主导,以优势为基础的模型.
- 研究人员必须优先考虑建立信任和合作,尊重土著知识系统.
- 文化响应的方法对于准确的检测和有效的支持至关重要.
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