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Sickle cell disease: problem solving/coping methods among affected children and their non-affected siblings.

E J Lee1, D Phoenix, W Brown

  • 1Clemson University School of Nursing, South Carolina, USA.

The Journal of School Nursing : the Official Publication of the National Association of School Nurses
|March 23, 1999
PubMed
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Children with sickle cell disease and their siblings use similar coping strategies for school stress. Both groups effectively employ direct action when facing difficult social and academic situations.

Area of Science:

  • Pediatric Psychology
  • Child Development
  • Hematology

Background:

  • Sickle cell disease (SCD) presents unique challenges for affected children, potentially impacting social and academic functioning.
  • Understanding coping mechanisms in children with chronic illnesses is crucial for developing targeted support strategies.
  • Peer and sibling comparisons offer valuable insights into adaptation and resilience.

Purpose of the Study:

  • To describe and compare the problem-solving and coping strategies of children with sickle cell disease and their unaffected siblings.
  • To explore how these children navigate social and academic stressors in a school environment.

Main Methods:

  • A descriptive research design was employed.
  • Participants included a small group of children diagnosed with sickle cell disease and their non-affected siblings.

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  • Data were collected using pictorial stimuli to elicit storytelling, providing qualitative insights into their experiences.

    • Main Results:

    • Problem-solving and coping methods were found to be identical between children with sickle cell disease and their unaffected siblings.
    • Both groups demonstrated a tendency to utilize direct action when confronting stressful situations.
    • No significant differences in adaptive strategies were observed within this sample.

    Conclusions:

    • Children with sickle cell disease and their siblings exhibit similar approaches to managing school-related stress.
    • Direct action appears to be a common and effective coping mechanism for both groups.
    • The findings suggest that the presence of sickle cell disease may not fundamentally alter a child's core problem-solving and coping styles in this context, though generalizability is limited by sample size.