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Health care concerns among parents of children with mental retardation

S Chomicki, L Wilgosh

    Children'S Health Care : Journal of the Association for the Care of Children'S Health
    |March 4, 1993
    PubMed

    Insights

    Parental concerns about healthcare for children with mental retardation (MR) differ based on impairment severity. Parents of children with severe MR reported more concerns regarding hospitalization and parent-professional relationships.

    Area of Science:

    • Developmental Psychology
    • Pediatric Healthcare
    • Special Education

    Background:

    • Parental concerns are crucial in navigating healthcare for children with intellectual disabilities.
    • Understanding these concerns can improve service delivery and family support.
    • Previous research has not fully differentiated concerns based on the severity of mental retardation.

    Purpose of the Study:

    • To compare the healthcare concerns of parents with children experiencing moderate versus severe mental retardation.
    • To identify specific healthcare variables that elicit greater concern in parents based on their child's disability severity.

    Main Methods:

    • A preliminary study utilizing a questionnaire format.
    • Comparison of parental concerns across four distinct healthcare variables.
    • Inclusion of parents of children with moderate and severe mental retardation.

    Main Results:

    • Parents of children with severe mental retardation reported significantly higher concerns about hospitalization compared to parents of children with moderate mental retardation.
    • Parents of children with severe disabilities also expressed greater concerns regarding parent-professional relationships.
    • All parents indicated a high level of concern about professional competence in healthcare providers.

    Conclusions:

    • The severity of intellectual impairment is a significant factor influencing parental concerns in seeking healthcare for children with mental retardation.
    • Findings suggest a need for tailored support and improved professional training to address specific parental anxieties.
    • Enhancing professional knowledge and optimizing service delivery are recommended to better support families of children with mental retardation.

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