The sickle cell mutual assistance movement

The purpose of this paper is to describe the mutual help movement that is occurring in the sickle cell community. As sickle cell disease primarily affects African Americans in the United States, the research can show how mutual assistance groups are proliferating among this group of individuals. The study will provide the only qualitative analysis of mutual assistance groups known to exist that are primarily comprised of African Americans. In addition, demographic information on the leaders of these groups will be reported. This information can serve to educate individuals interested in forming mutual assistance groups for individuals affected by sickle cell disease. It is hoped that this information will broaden the perspective of mutual assistance groups and will illustrate that mutual assistance groups also serve diverse cultures in this country.