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Related Experiment Videos

Chronic sorrow: parents' lived experience.

S K Krafft1, L J Krafft

  • 1Faculty Practice, School of Nursing, Allegheny University of the Health Sciences, USA.

Holistic Nursing Practice
|April 10, 1999
PubMed
Summary

Chronic sorrow is a persistent sadness experienced by parents of profoundly mentally retarded children, extending beyond their caretaking role. This lifelong grief mirrors losses from bereavement, highlighting its enduring impact.

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Area of Science:

  • Parenting Studies
  • Grief and Loss Research
  • Disability Studies

Background:

  • Chronic sorrow is a complex grief response often associated with ongoing losses.
  • Parenting a child with profound intellectual disability presents unique and lifelong challenges.
  • Understanding parental experiences is crucial for developing effective support systems.

Observation:

  • This study explores the lived experiences of two healthcare professionals parenting an adult child with profound intellectual disability.
  • Their experiences are compared with existing literature on chronic sorrow.
  • The research examines the enduring nature of grief and loss in this specific population.

Findings:

  • Both literature and the parents' experiences confirm that chronic sorrow is a lasting, pervasive emotional state.

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  • The grief experienced is comparable to bereavement, involving a lifetime of ongoing losses.
  • This emotional impact persists even after the parents are no longer primary caregivers.

    • Implications:

    • Healthcare professionals should recognize chronic sorrow as a significant and enduring issue for parents of individuals with intellectual disabilities.
    • Interventions should address the lifelong nature of this grief, offering continuous support.
    • Further research is needed to develop tailored support strategies for families navigating chronic sorrow.