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Bladder exstrophy: psychological impact during childhood.

K Stjernqvist¹, C C Kockum

¹Department of Psychology, University of Lund, University Hospital, Sweden.

The Journal of Urology

|November 24, 1999

Summary

Bladder exstrophy significantly impacts children

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Area of Science:

Pediatric Surgery
Developmental Psychology
Quality of Life Research

Background:

Bladder exstrophy presents complex surgical and psychosocial challenges.
Long-term effects on children and families require comprehensive evaluation.

Purpose of the Study:

To assess the impact of bladder exstrophy on child behavior, self-esteem, and quality of life.
To evaluate the psychological well-being of parents and identify needs for intervention.

Main Methods:

Follow-up study of 15 children (3-18 years) treated at a pediatric surgery clinic.
Utilized validated instruments for behavior (Höök-Cederblad, CBCL), self-esteem (I Think I Am), and quality of life (MSH-II).
Separate interviews conducted with children and parents.

Main Results:

Most children achieved dryness with catheterization; behavioral issues were present in a minority.
High self-esteem reported in most adolescents; quality of life impacted by self-care limitations.
Mothers reported birth trauma; some parents experienced psychiatric symptoms.

Conclusions:

Self-esteem can be preserved despite physical challenges associated with bladder exstrophy.
The condition profoundly affects children and family dynamics, necessitating tailored support.
Multidisciplinary intervention is crucial for children and parents throughout development.

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