Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

Autopsy recruitment program for African Americans.

G J Bonner1, O K Darkwa, P B Gorelick

  • 1University of Illinois, College of Nursing, Department of Medical Surgical Nursing, Chicago 60612, USA. GJBonner@uic.edu

Alzheimer Disease and Associated Disorders
|February 24, 2001
PubMed
Summary

Culturally sensitive recruitment programs significantly increased brain autopsy consent rates among African Americans with stroke and dementia. This approach addresses low participation by understanding and respecting family and cultural factors in end-of-life decisions.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Characteristics of a Diverse Cohort of Stroke Patients with SARS-CoV-2 and Outcome by Sex.

Journal of stroke and cerebrovascular diseases : the official journal of National Stroke Association·2020
Same author

Acute ischemic stroke and transient ischemic attack: A costly business and a strategy to reduce costs (the "Time-Zero" plan).

Journal of stroke and cerebrovascular diseases : the official journal of National Stroke Association·2015
Same author

The effects of cerebral white matter changes on cardiovascular responses to cognitive and physical activity in a stroke population.

Psychophysiology·2012
Same author

Is asymptomatic hemorrhagic transformation really innocuous?

Neurology·2012
Same author

Thalamic integrity underlies executive dysfunction in traumatic brain injury.

Neurology·2010
Same author

Difference invulnerability of cerebral arterial bifurcation and straight portion for development of endothelial damage.

Journal of stroke and cerebrovascular diseases : the official journal of National Stroke Association·2007

Area of Science:

  • Neurology
  • Medical Ethics
  • Public Health

Background:

  • Low consent rates for brain autopsy among African Americans with stroke and dementia present a significant research gap.
  • Existing recruitment strategies have yielded a historically low response rate of 4% in this demographic.

Purpose of the Study:

  • To improve consent rates for brain autopsy in African Americans diagnosed with stroke and dementia.
  • To investigate the reasons behind the low autopsy response rate in this minority group.

Main Methods:

  • Implementation of a specialized, culturally sensitive brain autopsy recruitment program.
  • Conducting face-to-face, open-ended interviews with 133 patient and family caregiver pairs.
  • Tracking autopsy consent and completion rates before and after program implementation.

Related Experiment Videos

Main Results:

  • The specialized recruitment program increased autopsy completion rates from 2.22% to 29%.
  • Key factors influencing consent included existing attitudes, family agreement, and concerns about funeral delays.
  • A statistically significant difference (p < 0.0001) was observed in autopsy completion rates post-program implementation.

Conclusions:

  • Culturally sensitive recruitment strategies are effective in increasing brain autopsy consent among African American caregivers.
  • Addressing specific cultural and familial concerns is crucial for improving participation in postmortem examinations.
  • Ethically tailored recruitment is essential for higher consent rates in minority populations.