NCCN outcomes research database: data collection via the Internet

Since 1997, the National Comprehensive Cancer Network (NCCN) outcomes database has successfully collected and reported patterns of care and outcomes data in the oncology setting. Breast cancer was the first cancer site chosen for this outcomes study, with non-Hodgkin's lymphoma targeted as the next site. Quarterly reports of the data are compiled and distributed to all participating centers. The results for each institution are given to the Principal Investigator at the respective institution. At present, the NCCN database contains more than 100,000 records of longitudinal data on more than 5,000 women with breast cancer. Extending data collection to the community setting is a goal.