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Cleft lip and palate care in the United Kingdom--the Clinical Standards Advisory Group (CSAG) Study. Part 1:

J R Sandy1, A C Williams, D Bearn

  • 1Division of Child Dental Health, University of Bristol Dental School, England. jonathan.sandy@bris.ac.uk

The Cleft Palate-Craniofacial Journal : Official Publication of the American Cleft Palate-Craniofacial Association
|February 24, 2001
PubMed

Insights

This study reviews UK cleft care history and outlines a national assessment methodology. It details methods for evaluating outcomes in children with cleft lip and palate.

Area of Science:

  • Craniofacial surgery
  • Pediatric healthcare
  • Public health outcomes

Background:

  • Cleft lip and palate care requires standardized assessment.
  • Historical context of cleft care in the UK is essential for progress.

Purpose of the Study:

  • To review the history of cleft care in the United Kingdom.
  • To establish the rationale and methodology for a national cleft care study.
  • To survey training for recently appointed clinicians in cleft care.

Main Methods:

  • Descriptive overview of a national study.
  • Involved 50 National Health Service cleft teams.
  • Included two age cohorts (5 and 12-year-olds) with nonsyndromic complete unilateral cleft lip and palate and their parents.

Main Results:

  • Facial development and appearance were assessed.
  • Quality of bone grafts, speech, and oral health were evaluated.
  • Patient and parent satisfaction levels were measured.

Conclusions:

  • A national assessment of cleft care is justified.
  • The methodology for a cross-sectional outcome study was described.
  • Training for clinicians in cleft care was surveyed.
Abstract

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