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How do AD patients and their caregivers decide whether to enroll in a clinical trial?
J H Karlawish1, D Casarett, J Klocinski
1Department of Medicine, The University of Pennsylvania, Philadelphia, USA. Jasonkar@mail.med.upenn.edu
Neurology
|March 29, 2001
Abstract:
To examine how patients and caregivers decide whether to enroll in a clinical trial, the authors conducted semi-structured interviews with 22 family caregivers of patients with mild to moderate AD who were recruited for a clinical trial. They found that a caregiver who enrolls a patient in research generally involves the patient in the decision-making process, reports that the patient shares in the decision, and regards the risks and benefits to the patient and to the caregiver as interdependent.