Search research articles

ABOUT JoVE

Overview Leadership Blog JoVE Help Center

AUTHORS

Publishing Process Editorial Board Scope & Policies Peer Review FAQ Submit

LIBRARIANS

Testimonials Subscriptions Access Resources Library Advisory Board FAQ

RESEARCH

JoVE Journal Methods Collections JoVE Encyclopedia of Experiments Archive

EDUCATION

JoVE Core JoVE Business JoVE Science Education JoVE Lab Manual Faculty Resource Center Faculty Site

Terms & Conditions of Use

Search research articles

Related Experiment Videos

Perceived stigma in Spasmodic Torticollis.

I Papathanasiou¹, L MacDonald, R Whurr

¹Therapy Services, National Hospital for Neurology and Neurosurgery, United Kingdom. i.papathanasiou@ucl.ac.uk

Movement Disorders : Official Journal of the Movement Disorder Society

|April 11, 2001

Summary

Spasmodic Torticollis (ST) causes physical disfigurement, leading to significant perceived stigma for most patients. This stigma impacts social, private, and work life, requiring clinical consideration.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by

Same author

A longitudinal analysis of the economic cost of all phases of TB care in a low incidence setting.

IJTLD open·2025

Same author

Inflammation dynamically regulates steroid hormone metabolism and action within macrophages in rheumatoid arthritis.

Journal of autoimmunity·2024

Same author

EPA Consensus Project Paper: The Influence of Prosthetic Factors on the Incidence of Peri-implantitis Around Single Implants: A Systematic Review.

The European journal of prosthodontics and restorative dentistry·2023

Same author

EPA Consensus Project Paper: Failure Rates of Direct Versus Indirect Single-Tooth Restorations. A Systematic Review and Meta-Analysis.

The European journal of prosthodontics and restorative dentistry·2023

Same author

Exploiting Real-Time Genomic Surveillance Data To Assess 4CMenB Meningococcal Vaccine Performance in Scotland, 2015 to 2022.

mBio·2023

Same author

Effectiveness of strategies to increase participation in school-based epidemiological surveys: a rapid review.

Community dental health·2023

Area of Science:

Neurology
Psychology
Sociology

Background:

Spasmodic Torticollis (ST) is a neurological movement disorder causing physical disfigurement.
The social and psychological impacts, particularly stigma, are poorly understood.

Purpose of the Study:

To examine the presence, dimensions, and degree of perceived stigma in patients with ST.
To understand the social dimensions of ST.

Main Methods:

Two-stage study involving interviews with 10 patients and questionnaires for 100 patients.
Developed a self-rating measure of stigma including avoidance, self-consciousness, and feeling different.

Main Results:

The majority of ST patients perceived moderate to severe stigma.

Related Experiment Videos

Stigma negatively affected patients' social, private, and working lives.

Conclusions:

Perceived stigma is a significant issue for individuals with Spasmodic Torticollis.
Stigma should be a key consideration in the clinical management of ST.