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A measure of informed choice.

T M Marteau1, E Dormandy, S Michie

  • 1Psychology and Genetics Research Group, Guy's, King's and St Thomas's School of Medicine, King's College, London, UK. theresa.marteau@kcl.ac.uk

Health Expectations : an International Journal of Public Participation in Health Care and Health Policy
|May 22, 2001
PubMed
Summary

This study developed a new measure for informed choice in healthcare screening. The tool assesses knowledge and attitudes, showing promise for evaluating informed decision-making in patients.

Keywords:
Empirical ApproachGenetics and Reproduction

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Area of Science:

  • Healthcare Decision-Making
  • Psychometrics
  • Health Services Research

Background:

  • Informed choice is crucial for patient autonomy in healthcare.
  • Existing measures may not fully capture the multidimensional nature of informed choice.
  • Developing reliable tools to assess informed choice is essential for evaluating healthcare interventions.

Purpose of the Study:

  • To develop and validate a brief measure of informed choice for screening tests.
  • To operationalize informed choice as knowledge, values alignment, and behavioral implementation.
  • To assess the feasibility of measuring informed choice in a clinical setting.

Main Methods:

  • Conceptualized informed choice based on knowledge, values, and behavior.
  • Developed an eight-item knowledge scale and a four-item attitude scale.
  • Administered scales to 66 women offered antenatal screening; analyzed reliability and classified choices.

Main Results:

  • Acceptable internal reliability for both knowledge (alpha=0.82) and attitude (alpha=0.83) scales.
  • Of 42 women completing scales, 18 (43%) were classified as making an informed choice.
  • 24 (57%) were classified as making an uninformed choice, indicating a need for improved decision support.

Conclusions:

  • The developed measure shows feasibility for assessing informed choice in screening contexts.
  • The brief scale effectively captures key components of knowledge and attitudes.
  • Further validation with larger, diverse populations and different screening tests is warranted.