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Human genome research in an interdependent world.

Alexander Morgan Capron

    Kennedy Institute of Ethics Journal
    |September 1, 1991
    PubMed
    Summary
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    Editor's Note, June 2025.

    Kennedy Institute of Ethics journal·2026
    See all related articles

    This conference focused on the global ethical, legal, and social issues (ELSI) of the Human Genome Project (HGP). It emphasized international responses to gene mapping and sequencing challenges.

    Area of Science:

    • Genomics
    • Bioethics
    • International Law

    Background:

    • The Human Genome Project (HGP) has spurred numerous conferences on its ethical, legal, and social implications (ELSI).
    • Previous meetings primarily focused on domestic and clinical legal issues related to gene mapping and sequencing.

    Purpose of the Study:

    • To convene a global discussion on the ELSI of the HGP.
    • To identify and concentrate on issues requiring international-level responses.

    Main Methods:

    • Held an international conference titled "Human Genome Research in an Interdependent World" at the National Institutes of Health (NIH).
    • Facilitated discussions beyond comparative legal analyses to address global challenges.

    Main Results:

    Keywords:
    Biomedical and Behavioral ResearchGenetics and ReproductionHuman Genome Project

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  • Highlighted the international dimension of gene mapping and sequencing.
  • Identified specific ELSI topics necessitating global cooperation for resolution.
  • Conclusions:

    • The HGP's ethical, legal, and social issues demand international collaboration.
    • Future research and policy must consider a global perspective for effective solutions.