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The current privacy environment: implications for third-party research.

K L Coy1

  • 1Mullenholz, Brimsek & Belair, 1150 Connecticut Ave. NW, Suite 700, Washington, DC 20036, USA.

The Journal of Continuing Education in the Health Professions
|January 24, 2002
PubMed
Summary

Public concern about information privacy is at an all-time high, driving significant legislative and regulatory changes. New health information privacy rules will impact the healthcare industry and medical research.

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Area of Science:

  • Health Law
  • Public Health
  • Information Science

Background:

  • Public concern regarding information privacy has surged to unprecedented levels.
  • Factors contributing to this include evolving attitudes towards information, institutional distrust, technological anxieties, and fear of harm.
  • Increased media attention on privacy issues often negatively impacts organizations with scrutinized information practices.

Purpose of the Study:

  • To provide an overview of privacy, including its definition and historical role in American tradition.
  • To examine the current privacy landscape, particularly public opinion on privacy in both general and medical research contexts.
  • To analyze recent and proposed regulatory actions concerning health information privacy and future legislative prospects.

Main Methods:

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  • Review of public opinion survey data on information privacy.
  • Analysis of media coverage related to privacy concerns.
  • Examination of federal and state legislative and regulatory activities concerning health information privacy.

Main Results:

  • Public concern about information privacy is at an all-time high and shows no signs of decreasing.
  • This heightened concern has led to substantial legislative and regulatory actions at federal and state levels.
  • New health information privacy rules, such as those under the Health Insurance Portability and Accountability Act (HIPAA), will significantly affect the healthcare sector and medical research.

Conclusions:

  • The current environment reflects a significant shift in public attitudes towards privacy, necessitating adaptive strategies from organizations.
  • The Health Insurance Portability and Accountability Act (HIPAA) regulations represent a major regulatory development impacting health information privacy.
  • Ongoing legislative and regulatory scrutiny suggests a continuing evolution of privacy laws and their enforcement in the healthcare domain.