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The Edinburgh Principles with accompanying guidelines and recommendations
1Centre for Social Research on Dementia, Department of Applied Social Science, Faculty of Human Sciences, University of Stirling, UK. h.a.wilkinson@stirling.ac.uk
Journal of Intellectual Disability Research : JIDR
|March 19, 2002
Summary
Experts developed the Edinburgh Principles to improve care for individuals with intellectual disability (ID) and dementia. These principles offer a foundation for enhanced support services and research for those with ID and dementia.
Area of Science:
- Gerontology and Intellectual Disability Research
- Healthcare Policy and Service Design
Background:
- Growing need for specialized care for individuals with intellectual disability (ID) experiencing dementia.
- Limited existing frameworks addressing the unique rights, needs, and service requirements of this population.
Framework:
- The Edinburgh Principles: Seven foundational statements for service design and support.
- Focus on rights, needs, and enhanced support for people with ID and dementia, and their carers.
- Guidelines structured around a four-point approach: philosophy of care, practice adaptation, systems coordination, and research promotion.
Implementation:
- Recommendations for adopting a workable philosophy of care tailored to intellectual disability and dementia.
- Strategies for adapting service delivery practices at the point of care.
- Emphasis on coordinating diverse healthcare and support systems.
- Call for promoting relevant research to advance understanding and practice.
Implications:
- Expected global adoption of the Edinburgh Principles by service organizations.
- Establishment of a baseline for future discussions, research, and practice development in ID and dementia care.
- Potential to significantly enhance support for individuals with ID and dementia and their caregivers worldwide.