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Brief report: Assessment of children's gastrointestinal symptoms for clinical trials

Lynn S Walker1, Susan C Sorrells

  • 1Department of Pediatrics, Vanderbilt University School of Medicine, Nashville, TN 37232, USA. Lynn.Walker@mcmail.vanderbilt.edu

Journal of Pediatric Psychology
|March 23, 2002
PubMed

Insights

This pilot study shows a new method for assessing daily symptoms and functioning in children with gastrointestinal issues is promising. Parents and children found the computer-based symptom assessment engaging and accurate.

Area of Science:

  • Pediatric gastroenterology
  • Clinical informatics
  • Patient-reported outcomes

Background:

  • Assessing daily symptoms and functioning in pediatric patients is crucial for effective treatment.
  • Existing methods may not capture the dynamic nature of symptoms and their impact on daily life.
  • Novel data collection procedures are needed to improve the accuracy and engagement of pediatric symptom reporting.

Purpose of the Study:

  • To pilot a novel procedure for assessing daily symptoms and functioning in pediatric patients.
  • To evaluate the feasibility and acceptability of a computer-based data collection method for children and parents.
  • To explore the utility of this procedure in a pediatric gastroenterology setting.

Main Methods:

  • A pilot study involving 11 parent-child dyads with constipation and abdominal pain.
  • Families used a hand-held computer and modem for 7 days to report on children's gastrointestinal symptoms and functional interference.
  • Parents participated in a telephone interview to evaluate the procedure.

Main Results:

  • Parents reported children understood most questions, and computer-entered responses were accurate.
  • Parents and children expressed enthusiasm for the data collection method.
  • Some technical challenges were encountered with the computer system.

Conclusions:

  • The computer-based daily symptom and functioning assessment procedure shows promise for pediatric symptom outcome evaluation.
  • Despite minor technical issues and a small sample size, the method was well-received by participants.
  • Further research with larger cohorts is warranted to confirm its utility.
Abstract

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