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Related Experiment Videos

[Unilateral forearm agenesis and prosthesis].

B Choumon1, A Ritz, E Corbet

  • 1Service de Rééducation Fonctionnelle Pédiatrique Escale, Centre Hospitalier Lyon-Sud, 69495 Pierre-Bénite.

Revue De Chirurgie Orthopedique Et Reparatrice De L'Appareil Moteur
|April 26, 2002
PubMed
Summary

Healthcare providers

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Area of Science:

  • Congenital limb differences
  • Prosthetic device adoption
  • Healthcare provider perception

Context:

  • Unilateral congenital antebrachial agenesis (UABA) is a condition where children achieve significant independence.
  • Prosthetic fitting for UABA is often indicated based on healthcare provider understanding, not solely child need.
  • Parent and healthcare provider views on UABA and prosthetics differ significantly.

Purpose:

  • To explore and understand the differing representations of unilateral antebrachial agenesis (UABA) among parents and healthcare providers.
  • To identify key themes influencing prosthetic indication decisions in children with UABA.
  • To inform the development of more appropriate healthcare proposals and consultations.

Summary:

  • A study involving 16 families and 3 healthcare teams revealed key themes: parental concern for social integration, a paradoxical view of children as independent yet handicapped, and negative perceptions of prostheses.
  • Significant discrepancies were noted between parents' and healthcare providers' representations of UABA and its management.
  • The study highlights the importance of addressing the psychological and social aspects of UABA management.

Impact:

  • Findings suggest that improving healthcare provider understanding of UABA and prosthetic implications is crucial.
  • Recommendations include developing modified consultation approaches for healthcare providers.
  • The study emphasizes a shift towards altering representations of the child rather than focusing solely on physical changes or prosthetic fitting.

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