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[The Dutch Pediatric Surveillance System; a quality focused instrument for prevention and research]
R A Hira Sing1, R Rodrigues Pereira
1TNO Preventie en Gezondheid, NSCK, Postbus 2215, 2301 CE Leiden.
Insights
The Dutch Paediatric Surveillance System monitors rare and new diseases in children to improve public health. This system aids in disease prevention and advances scientific research for better pediatric care.
Area of Science:
- Pediatric epidemiology
- Public health surveillance
- Clinical research
Context:
- Established by the Dutch Paediatric Society and managed by TNO Prevention and Health.
- Utilizes a monthly report card system sent to clinically active pediatricians.
- Achieves a high response rate of approximately 90%.
Purpose:
- To ascertain the population-level prevalence of rare and emerging diseases in children (0-18 years).
- To foster scientific investigation into the etiology, characteristics, prognosis, treatment, and prevention of these pediatric diseases.
Summary:
- The surveillance system tracks up to 10 diseases monthly via a report card sent to pediatricians.
- High response rates ensure robust data collection for epidemiological analysis.
- Collected data informs public health strategies and clinical practice.
Impact:
- Facilitates primary and secondary prevention of diseases and their complications.
- Provides crucial data for enhancing the quality of pediatric care and health management.
- Serves as a vital tool for advancing scientific knowledge and research in pediatrics.
Abstract:
The Dutch Paediatric Surveillance System was initiated by the Dutch Paediatric Society and is housed within the TNO Prevention and Health office. The purpose of the surveillance system is (a) to gain insight on a population level into the prevalence of rare and new diseases in youths (0-18 year), and (b) to promote scientific research addressing the background, nature and prognosis, as well as the treatment and prevention, of these diseases. A monthly report card is sent to all clinically active paediatricians with maximally 10 diseases under surveillance. The response rate is approximately 90%. The information from the registration can lead to primary or secondary prevention (prevention of the disease or of its complications, respectively). The system provides information for the amelioration of quality of care and for health management and, at the same time, acts as an instrument for scientific research.