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[Guidance to parent of black babies with a cleft lip and palate]
1Departement Kommunikasiepatologie, Universiteit van Pretoria.
Abstract:
There are indications that the parents of babies with a cleft lip and palate often require more information regarding their baby's birth defect than what is given to them. In South Africa shortcomings exist in the literature covering the specific requirements of parents of black cleft lip and palate babies. In this study the unique requirements of parents of black cleft lip and palate babies was determined and, based on these results, an information pamphlet was prepared for this population group. Based on the results obtained with the help of fifteen participants it was established, firstly, that the needs of black South-African parents of children with a cleft lip and palate are similar to the needs of parents of babies with the same birth defect world-wide. Secondly, it was established that the information pamphlet which was compiled as part of the study made a positive contribution to parent guidance conducted with the participants. Important therapeutic implications were also reflected by the results.
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