Cystic fibrosis: transition from paediatric to adult care

Jacqui Cowlard1

  • 1Royal Brompton Hospital, London. J.Cowlard@rbh.nthames.nhs.uk

Nursing Standard (Royal College of Nursing (Great Britain) : 1987)
|November 7, 2003
PubMed

Insights

Improving cystic fibrosis care transitions for adolescents is crucial. A new joint consultation system enhanced the transfer process from pediatric to adult care, though further development is needed.

Area of Science:

  • Pediatric Pulmonology
  • Adolescent Medicine
  • Healthcare Management

Background:

  • The Royal Brompton Hospital manages a significant cystic fibrosis (CF) caseload, with over 350 children and 600 adults.
  • Approximately 100 young people with CF will transition from pediatric to adult care within five years.
  • The existing transfer process requires review to meet the needs of adolescents.

Purpose of the Study:

  • To review current practices for transitioning young people with CF from pediatric to adult care.
  • To assess the needs of healthcare professionals, patients, and caregivers during this transition.
  • To evaluate the effectiveness of a new joint transition consultation system.

Main Methods:

  • Introduction of joint transition consultations involving pediatric and adult CF care teams in June 2000.
  • Approval of a hospital-wide standard for transition care.
  • Audit of the transition clinic system in June 2002 to assess improvements.

Main Results:

  • The joint transition consultation system demonstrated an improvement in the transfer process from pediatric to adult CF care.
  • The audit indicated positive changes following the implementation of the new system.
  • Despite improvements, ongoing service development is necessary to address adolescent-specific challenges.

Conclusions:

  • The implemented transition clinic system has positively impacted the transfer of young adults with CF to adult care.
  • Further enhancements are essential to fully address the unique challenges and individual requirements of adolescents during this critical phase.
  • Continued service development is recommended to optimize adolescent transition care in cystic fibrosis management.

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