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Published on: August 29, 2025
Cystic fibrosis: transition from paediatric to adult care
1Royal Brompton Hospital, London. J.Cowlard@rbh.nthames.nhs.uk
Insights
Improving cystic fibrosis care transitions for adolescents is crucial. A new joint consultation system enhanced the transfer process from pediatric to adult care, though further development is needed.
Area of Science:
- Pediatric Pulmonology
- Adolescent Medicine
- Healthcare Management
Background:
- The Royal Brompton Hospital manages a significant cystic fibrosis (CF) caseload, with over 350 children and 600 adults.
- Approximately 100 young people with CF will transition from pediatric to adult care within five years.
- The existing transfer process requires review to meet the needs of adolescents.
Purpose of the Study:
- To review current practices for transitioning young people with CF from pediatric to adult care.
- To assess the needs of healthcare professionals, patients, and caregivers during this transition.
- To evaluate the effectiveness of a new joint transition consultation system.
Main Methods:
- Introduction of joint transition consultations involving pediatric and adult CF care teams in June 2000.
- Approval of a hospital-wide standard for transition care.
- Audit of the transition clinic system in June 2002 to assess improvements.
Main Results:
- The joint transition consultation system demonstrated an improvement in the transfer process from pediatric to adult CF care.
- The audit indicated positive changes following the implementation of the new system.
- Despite improvements, ongoing service development is necessary to address adolescent-specific challenges.
Conclusions:
- The implemented transition clinic system has positively impacted the transfer of young adults with CF to adult care.
- Further enhancements are essential to fully address the unique challenges and individual requirements of adolescents during this critical phase.
- Continued service development is recommended to optimize adolescent transition care in cystic fibrosis management.
Abstract:
There is a current caseload of 350 children with cystic fibrosis at the Royal Brompton Hospital, and adult caseload of more than six hundred. Approximately 100 young people aged between 13 and 18 will transfer to adult care during the next five years. The transfer process between services was identified to be in need of review. The initial objectives were to review current practice for young people ready to transfer from paediatric to adult care, and to assess the needs of the professional, patient and caregivers at this time. In June 2000, a new system was introduced to the families, which offered them joint transition consultations with paediatric and adult cystic fibrosis care teams. A hospital-wide standard for transition was approved. In June 2002 an audit of the transition clinic system indicated an improvement in the process of transfer from paediatric to adult care. However, further service development is required to cater for the challenges and individual needs of adolescents.
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